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March 2022 Newsletter

Moving Together Research Program

Moving Together is an online group movement program for people with dementia and their care partners. Moving Together integrates physical, cognitive, and social activities that work with parts of the brain that remain intact as memory declines – muscle memory, mindfulness, and the ability to meaningfully connect with others.

Who can participate in the Moving Together program?

To qualify for the study, you or someone you care for must be diagnosed with mild to moderate dementia, participate as a pair (which includes a person with memory loss and a care partner), have access to a computer, laptop, or iPad with internet. The study seeks a person with memory loss and a care partner to join a 1-hour online class 2x a week for 12 consecutive weeks.

See if you qualify to join the study HERE.

If you wish to learn more about the program, join the Moving Together team as they host an online information session to talk about what it is like to participate and the great results that past participants have experienced from improved mobility, quality of life, and reduced stress.

Online Information Session

Click HERE to Register

After sending registration, you will receive a confirmation email with a link to the online meeting.

Women and ADRD

Women are disproportionately impacted by Alzheimer’s disease and related dementias. Nearly two-thirds of people who develop Alzheimer’s are women, one in five women over 60 will develop Alzheimer’s, women of color are at higher risk of developing Alzheimer’s, and two-thirds of Americans that provide unpaid care of someone with dementia are women. There are several great resources for women with ADRD and women care partners. One in particular, the Women’s Alzheimer’s Movement, offers a wealth of resources for women on healthy aging, brain health, caregiving, clinical trials, and more. Access these guides here.

In honor of Women’s History month, we’d like to honor the many women who have paved the way in advancing ADRD treatments, diagnostics, and awareness from medical pioneers, to researchers, clinical trial participants, care partners and advocates.

AAIC ’22 – Save The Date

Save the date for the 2022 Alzheimer’s Association International Conference in San Diego and online. The world’s leading scientists, clinical researchers, early career investigators, clinicians and the care research community will share breaking research discoveries that will lead to methods of prevention and treatment and improvements in diagnosis for Alzheimer’s disease. We look forward to seeing you there!

When: 7/31 – 8/4

Register for the event here.

NIA Funded Online Studies – Enrolling Caregivers

Caregiving During Crisis

Are you a care partner of someone living with Alzheimer’s or another Dementia? Caregiving During Crisis is a National Institute on Aging funded program to help care partners adapt to caregiving during the Covid-19 pandemic. The online sessions provide the knowledge and skills to keep you and your person safe, navigate the healthcare system, manage home life with dementia, and more.

Interested in joining? Fill out this quick survey to see if you qualify.

Download the Study Flyer

Tele-Savvy @ Home

Family, friends, or care partners of people with dementia can benefit from taking part in the Tele-Savvy @ Home caregiver support study. The Tele-Savvy @ Home study, funded by the National Institute on Aging, provides the needed skills, knowledge, and confidence to caregiving. The program is delivered online with learning sessions on managing caregiver stress and promoting well-being.

Interested in joining? Fill out this quick survey to see if you qualify.

Download the Study Flyer

Football Coach Caring for His Wife with PSP

Watch football coach Tom Coughlin discuss caring for his wife who has a form of dementia, progressive supranuclear palsy (PSP). Tom and his wife Judy have lived a life of service and caring, including the 25 years dedicated to their foundation to help families of children battling cancer. Finding himself in a different role of service, Tom describes the awesome and difficult responsibilities of caregiving. His hope for all people caring for someone with dementia is to know that they are not alone and encourages care partners to ask for help when they need it.

What’s Happening in the Alzheimer’s Field?

The Relationship Between Hearing Loss and Dementia

Hearing loss has been associated with cognitive impairment and an increased risk of dementia. An article published in the journal Aging and Mental Health noted that, “… hearing impairment is independently associated with a 30-40% rate of accelerated cognitive decline.” Study author Frank Lin, MD, PhD, told Johns Hopkins Medicine, “Brain scans show us that hearing loss may contribute to a faster rate of atrophy in the brain.” The researchers also found that compared to those with normal hearing, people with severe hearing loss are five times more likely to have dementia, while those with moderate hearing loss are three times more likely, and those with mild hearing loss are twice as likely. Further studies are needed to determine the extent of the relationship between hearing loss and dementia. However, current research suggests that treatment for hearing loss can positively affect cognitive performance. Learn more here.

NTG Releases Report on Dementia Assessment

A new report has been issued by the National Task Group on Intellectual Disabilities and Dementia Practices (NTG) and the Lumind IDSC Foundation on the barriers to determining MCI and dementia in adults with neuroatypical conditions, such as acquired brain injury, autism, cerebral palsy, Down syndrome, intellectual disability, serious mental illness, and significant sensory impairments. The report is called “Examining Adults with Neurotypical Conditions for MCI/Dementia During Cognitive Impairment Assessments: Report of the Neuroatypical Conditions Expert Consultative Panel”. The panel recommends broadening federal guidance to include adaptations of assessment practices; expanding training for clinicians about such conditions; and undertaking research to produce more evidence-based information on assessing neuroatypical adults. Download the report here.

Interested in learning how RP makes connections between care communities and researchers?

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