RECRUITING NOW: Family Caregiver Research Opportunity
Enrollment begins Wednesday, Sept 11th
This online pilot is evaluating a new mobile program to support dementia caregivers well-being. It is funded by the National Institute on Aging and requires a caregiver to complete two surveys, complete about five web based activities, and receive text messages for one month. Caregivers are compensated for their participation. Caregivers can sign-up 9/11-10/9 or until 50 caregivers have been enrolled.
Please share the following link with any caregivers who may be interested in participating: prochange.com/caring4caregivers. OR Contact Recruitment Partners to receive a flyer with study information.
Turning Point Documentary Film Sheds Light on the Importance of Research Studies
The race to find treatments, if not a cure, for Alzheimer’s disease has seen setback after devastating setback in recent years, prompting the medical and scientific community to question their answers about the underlying mechanisms of the disease.
In his documentaryTurning Point, acclaimed filmmaker and director James Keach (Walk the Line;Glen Campbell… I’ll Be Me) follows a team of dedicated scientists on the front lines of Alzheimer’s research and captures the raw disappointment and renewed hope of those working to find a cure for this fatal, incurable disease, which affects roughly 5.7 million Americans, or 1 in 10 adult Americans over the age of 65.
Where will the future of Alzheimer’s research take us? How close are we to conquering this disease? How will we improve the process of recruitment and retention for research studies?
If you are interested in attending one of the screenings listed below, please RSVP by clicking the RSVP link after the appropriate screening, or email theTurning Pointscreenings team firstname.lastname@example.org more information. The screenings team can also help you book your own community screening of the film.
11/15/19: Gerontological Society of America Conference – Austin, TX(Conference event)
11/16/19: UCSD & Pacific Research Network (AM Screening) – San Diego, CA(RSVP link forthcoming)
11/16/19: UCSD & Pacific Research Network (PM Screening) – San Diego, CA(RSVP link forthcoming)
11/19/19: Axiom Research & USF – Tampa, FL(RSVP link forthcoming)
What’s Happening in the Alzheimer’s Field?
World Alzheimer’s Month
World Alzheimer’s Month is the international campaign by Alzheimer’s Disease International (ADI) every September to raise awareness and challenge the stigma that surrounds dementia. World Alzheimer’s Month was launched in 2012. World Alzheimer’s Day is September 21st.
There are several ways you can participate in World Alzheimer’s Month. You could organize your own event, visit the ADI “Get Involved” page for materials and ideas, or join an activity organized by your national Alzheimer’s Association. You can also spread the word on social media using the hashtag #WorldAlzMonth.
Senate vote on NIH Funding
This week the United States Senate Committee on Appropriations is expected to act on vital funding for Alzheimer’s research at the National Institutes of Health (NIH).
The Senate Labor-HHS Appropriations Subcommittee will consider the Alzheimer’s Associations’ funding request of $350 million for NIH, as well as funding to implement theBOLD Alzheimer’s Act. These increases would be part of a larger Fiscal Year 2020 Appropriations bill. Following action by the subcommittee the full Appropriations Committee is then expected to act on the bill later in the week.
An overwhelming lack of specialty dementia diagnosis and care
For years, anecdotal evidence has supported the belief that most dementia patients do not receive a detailed diagnosis, but now researchers have quantified these inadequacies. By tracking nearly a quarter of a million people with dementia diagnoses over 5 years, researchers found that 85% were first diagnosed by a non-specialist and the vast majority of patients did not follow-up with a specialist. Without a proper diagnosis of the type of dementia, patients and families are not provided the range of treatment options available, knowledge of medications that could make the symptoms worse, and information on disease progression that can assist in advance care planning. Additionally, as research studies often require a differentiated diagnosis in inclusion criteria, individuals who do not receive a diagnosis that includes the type of dementia may not be able to access important on-going research.
Changing care roles: Early-onset Alzheimer’s Early-onset Alzheimer’s, which affects people under the age of 65, can have a different impact on a family than a typical AD diagnosis. This is showcased in a recent Syracuse.com Read more…
Recruitment Partners: December 2019 Newsletter New report on “Sandwich Caregivers” Over 11 million Americans are caring for both a child at home and an adult family member due to health needs or disability. This “forgotten Read more…
Recruitment Partners: November 2019 Newsletter How You Can Help Fight Alzheimer’s Disease Bill Gate’s recent blog post focuses on the difficulty finding a cure for Alzheimer’s Disease. He highlights finding enough participants as critical to Read more…